Ways to Give Back

Spina Bifida fundraising event.

Join a Committee


Our volunteers are the glue that holds our organization together! Volunteering allows you to connect with the Spina Bifida community and make a positive impact on the lives you touch. We offer a variety of volunteer experiences for all different interests which serve our community. We rely on our volunteers to lead, advise, and plan in the areas of governance, programming, fundraising, and advocacy; creating a more fulfilling impact on our consumers across the entire state. Become a volunteer today! Complete our Volunteer Interest Form after reading through ways YOU can get involved!

Join a Committee

What does it mean to be a committee member? Join a team of hardworking individuals who utilize their personal and professional skills of communication, organization, outreach, research, event planning, and facilitation to meet our mission! Committees often meet virtually for one hour a month on weekday evenings. 

What does it take to be an Advocate? Anyone who is interested in making a difference can be an Advocate! We work with local state and federal representatives to raise awareness about the Spina Bifida community. There are numerous ways to advocate and no support is too small!

We are seeking individuals who are passionate about ensuring our Board Members have the competencies necessary to perform their duties, use best practices with policies and procedures, and recommend revised and new policies and procedures. Experience in compliance, management, and / or organizational leadership is a plus!

Financial viability is crucial in meeting our mission! Therefore, we are seeking individuals who have the knowledge and expertise to provide governance and recommendations on investment strategies and policies, budget adjustments, financial input, and tax expertise. 

We are seeking organized and creative individuals excited about planning events! Our annual Dare to Dream Gala is our most exquisite and high-end event which includes a silent and live auction, event entertainment, three-course meal, and award recognition – it is always a sparkling time!

We are seeking individuals with the background and experience in growing organizations and / or fundraising. Help us develop the growth of the organization through planning and achieving strategic fundraising and marketing goals!

We are seeking individuals to help plan and implement our most popular annual friends and family event: The Spina Bifida Association of New York State Walk N Roll. We are not only walking and rolling for a good cause, but this event includes raffles, contests, merchandise, picinic food & beverages, vendors, and entertainment!

Join an
Advisory Council

What does it mean to be a council member?  Council members are called upon to provide guidance and advice based on their own personal experience, knowledge and expertise. The goal is to share insight, support, and resources related to the needs of those living with Spina Bifida in order to better serve our consumers. Council members are invited to apply for a one year-term and required to meet virtually four times a year, as well as be available by email or telephone throughout the year. 

Advisory Council

The council consists of a group of adults (18 years and older) living with Spina Bifida.

Caregiver Advisory Council

The council consists of a group of parents/caregivers of children with Spina Bifida.

Regional Advisory Council

The council consists of a group of people who live in the region who want to help the needs of our community.

Join Our Student
Internship Program

We offer various school-based internship positions for students from local universities. Areas of opportunity include fields of social work, nonprofit management, business, and marketing. Contact the office to learn about our available positions: info@sbanys.org / 518-399-9151