Young boy with Spina Bifida in wheelchair.

Who We Are

Two men with Spina Bifida laughing together.

About Spina Bifida

Two girls at Spina Bifida fundraising event.

Get Involved

Our Priorities

The Spina Bifida Association of New York State (SBANYS) is a not-for-profit organization whose mission is to build a better and brighter future for all those impacted by Spina Bifida. With that in mind, our goal is to meet that mission through three main areas of service: Support, Education, and Advocacy. Within these areas you will find services that include, but are not limited to: responding to requests for information/referrals, education outreach, advocacy and awareness initiatives, peer support, systems navigation, and programming. These services are available statewide, at no cost, and benefit individuals living with Spina Bifida across the lifespan.

What's Happening

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