News to Use

SBANYS Featured on WNYT News Channel 13

The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.

The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.

Blogs

Sleep Apnea and Spina Bifida
By Spina Bifida Association of NYS / March 24, 2026

Sleep Apnea and Spina Bifida

Sleep Apnea & Spina Bifida: What You Need to Know Sleep apnea and other sleep-related breathing disorders (SRBD) are common...

Read More
Weight and Health
By Spina Bifida Association of NYS / March 24, 2026

Weight and Health

Taking Charge of Weight & Health: Spina Bifida & Obesity Obesity can make daily life harder for people with Spina...

Read More
Spina Bifida and Bone Health
By Spina Bifida Association of NYS / March 24, 2026

Spina Bifida and Bone Health

Spina Bifida & Bone Health: Understanding Osteoporosis Adults with Spina Bifida are at higher risk for early-onset osteoporosis — a...

Read More
Emergency Planning
By Spina Bifida Association of NYS / March 24, 2026

Emergency Planning

People with disabilities, including those with Spina Bifida, are often overlooked in emergency planning. Without accessible shelters, transportation, and support,...

Read More
Latex Allergy
By Spina Bifida Association of NYS / March 24, 2026

Latex Allergy

Spina Bifida & Latex Allergy — Stay Safe from the Start People with Spina Bifida are at high risk for...

Read More
Awareness to Advocacy
By Spina Bifida Association of NYS / March 24, 2026

Awareness to Advocacy

Knowing about Spina Bifida is just the first step. Real change happens when awareness turns into advocacy. Awareness helps people...

Read More
Orthopedic Care in Spina Bifida
By Spina Bifida Association of NYS / March 24, 2026

Orthopedic Care in Spina Bifida

Orthopedic Care in Spina Bifida — Supporting Mobility and Independence Many people with Spina Bifida experience orthopedic and musculoskeletal conditions...

Read More
Chiari Type II in Spina Bifida
By Spina Bifida Association of NYS / March 24, 2026

Chiari Type II in Spina Bifida

Chiari Type II in Spina Bifida — Early Detection Matters Chiari Type II Malformation occurs in many people with Myelomeningocele...

Read More
Recognizing Tethered Cord in Spina Bifida
By Spina Bifida Association of NYS / March 24, 2026

Recognizing Tethered Cord in Spina Bifida

Recognizing Tethered Cord in Children and Adults with Spina Bifida Spinal cord tethering happens when the spinal cord becomes stuck...

Read More
Spina Bifida Affecting Motor Skills
By Spina Bifida Association of NYS / March 24, 2026

Spina Bifida Affecting Motor Skills

Spina Bifida can impact motor skills in different ways. Gross motor skills—like walking, climbing stairs, or transferring—may be more noticeably...

Read More
1 2 3