Voices of the Spina Bifida Community: Josh’s Story
Disability Pride Month is a time to celebrate disabled leaders breaking barriers in every space. Today, we are proud to...
Read MoreSBANYS Featured on WNYT News Channel 13
The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.
The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.
From Awareness to Action: Turing Your Voice into Legislative Change
This session focuses on turning awareness into practical advocacy. Featuring Julia Duff, Executive Director of the Spina Bifida Association of New York State, and Cliff Perez, it includes guidance on staying informed, building connections, and developing structured efforts that can lead to legislative progress.
Blogs
When You Can’t Feel the Warning Signs
For people with Spina Bifida, some areas of skin may be insensate, meaning they do not feel pain, heat, or...
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What You Can Do to Protect Skin Health
Skin-related issues can have a major impact on health, independence, daily routines, and overall quality of life for people with...
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What Heat Can Mean for Insensate Skin
What you need to know about heat and insensate skin. For people with Spina Bifida, some areas of the skin...
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What Caregivers Can Do to Support Skin Health
Helping someone with Spina Bifida check their skin regularly can prevent small problems from becoming bigger. Caregivers play a key...
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What Pressure and Moisture Can Mean for Skin Health
Pressure and moisture are two of the most common contributors to skin breakdown for people living with Spina Bifida. Pressure...
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What Men with Spina Bifida Should Know About Their Health
Did you know that men with Spina Bifida may face unique health challenges that require ongoing care and support throughout...
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How Ongoing Medical Care Supports Quality of Life
This Community Health Improvement Week, we’re highlighting how ongoing medical care can boost quality of life for men with Spina...
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Recognizing Headaches as a Possible Sign of Shunt Problems
“A headache is not always ‘just a headache.’” For many people with Spina Bifida and shunted hydrocephalus, a headache may...
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Why Preventive Care Matters for Men with Spina Bifida
National Men’s Health Week is a time to focus on preventive care and long-term health for men with Spina Bifida....
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