Mental Health in Spina Bifida: Understanding the Whole Picture
Mental health is multi-layered. For individuals with Spina Bifida, mental health is shaped by many connected factors that work together...
Read MoreSBANYS Featured on WNYT News Channel 13
The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.
The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.
From Awareness to Action: Turing Your Voice into Legislative Change
This session focuses on turning awareness into practical advocacy. Featuring Julia Duff, Executive Director of the Spina Bifida Association of New York State, and Cliff Perez, it includes guidance on staying informed, building connections, and developing structured efforts that can lead to legislative progress.
Blogs
Understanding How Mental Health Shapes Quality of Life in Spina Bifida
Quality of life is about more than physical health. Mental health plays a central role in how individuals with Spina...
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Voices of the Spina Bifida Community: Thomas’ Story
Meet Thomas In honor of National Get Caught Reading Month, we’re highlighting an author in our community. Thomas is 54...
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What Parents Hear at Diagnosis and What They Don’t
At diagnosis, many parents are told what their child might not do. When families hear Spina Bifida, conversations may center around surgery, mobility...
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Understanding Meningocele: How It Differs from Myelomeningocele
Meningocele is a type of Spina Bifida where a sac of fluid can be seen on a baby’s spine. The...
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How Spina Bifida Affects the Body: From Mobility to Daily Functions
How does Spina Bifida affect the body? In individuals with Myelomeningocele, the level of nerve involvement along the spine can impact how...
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Why Diagnosis Looks Different Across Types of Spina Bifida
Did you know Spina Bifida can be diagnosed at different times in life? Some forms, like Myelomeningocele and Meningocele, are often...
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Spina Bifida Myelomeningocele: What Does Daily Life Look Like?
Spina Bifida Myelomeningocele: What Does Daily Life Look Like? Here’s a closer look: Mobility support (wheelchairs, braces, adaptive equipment) Bladder...
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The Three Types of Spina Bifida: What’s the Difference?
Did you know there are three different types of Spina Bifida? Myelomeningocele – A sac of fluid is visible on the...
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Spina Bifida Occulta: the Hidden Form of Spina Bifida
Many have it and don’t know: Spina Bifida Occulta Spina Bifida Occulta means “hidden split spine.” In Spina Bifida Occulta,...
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