Snow Removal
Snow-covered sidewalks, ramps, and parking lots aren’t just inconvenient — they’re barriers. Winter shouldn’t stop accessibility. For wheelchair users and...
Read MoreSBANYS Featured on WNYT News Channel 13
The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.
The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.
Blogs
Stress and Executive Function
Stress does more than affect mood — it can directly impact executive function skills such as planning, organization, attention, and...
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Transitioning to Adult Care
Transitioning to Adult Care Starts Early! Moving from pediatric to adult medical care can feel overwhelming — but it doesn’t...
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Advocating for Better Chronic Pain Care
Living with chronic pain can be challenging, but you deserve care that listens and responds. If pain lasts for weeks...
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National Pharmacists Day
Living with Spina Bifida often means managing multiple medications. National Pharmacists Day is a reminder of how important it is...
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Hospital Accessibility
Accessibility in hospitals isn’t optional—it’s your right. When visiting, speak up and ask for: Accessible spaces for mobility devices Equipment...
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Path to Independence
Self-catheterization is an important step toward independence for many people with Spina Bifida. It allows individuals to manage their bladder...
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Monitoring Hydrocephalus
For people living with Spina Bifida, monitoring Hydrocephalus is essential. Shunts help drain excess fluid from the brain, but they...
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Update: Medicare DME Supplier Moratorium
We want to share a brief update regarding a recent six-month Medicare moratorium affecting certain Durable Medical Equipment (DME) suppliers....
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From Birth to Beyond: Mary’s Story
Your Bladder Cancer Checklist Living with Spina Bifida demands extraordinary strength, resilience, and self-advocacy. It’s not just about managing daily...
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