Prenatal Counseling
A prenatal diagnosis of Spina Bifida is an important moment, and families should not navigate it alone. Prenatal counseling brings...
Read MoreSBANYS Featured on WNYT News Channel 13
The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.
The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.
From Awareness to Action: Turing Your Voice into Legislative Change
This session focuses on turning awareness into practical advocacy. Featuring Julia Duff, Executive Director of the Spina Bifida Association of New York State, and Cliff Perez, it includes guidance on staying informed, building connections, and developing structured efforts that can lead to legislative progress.
Blogs
Mental Health Support for Expectant Mothers
Expecting a baby with Spina Bifida can feel overwhelming at times, and that’s okay. You don’t have to navigate it...
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Care After Birth for Babies with Spina Bifida
After birth, babies with Spina Bifida receive care tailored to their specific needs. Most babies are monitored in the NICU,...
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Chronic Pain in Women with Spina Bifida
Women with Spina Bifida experience chronic pain related to mobility challenges, spinal, and other physical health concerns. Yet too often,...
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Sleep Apnea and Spina Bifida
Sleep Apnea & Spina Bifida: What You Need to Know Sleep apnea and other sleep-related breathing disorders (SRBD) are common...
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Weight and Health
Taking Charge of Weight & Health: Spina Bifida & Obesity Obesity can make daily life harder for people with Spina...
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Spina Bifida and Bone Health
Spina Bifida & Bone Health: Understanding Osteoporosis Adults with Spina Bifida are at higher risk for early-onset osteoporosis — a...
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Emergency Planning
People with disabilities, including those with Spina Bifida, are often overlooked in emergency planning. Without accessible shelters, transportation, and support,...
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Latex Allergy
Spina Bifida & Latex Allergy — Stay Safe from the Start People with Spina Bifida are at high risk for...
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Awareness to Advocacy
Knowing about Spina Bifida is just the first step. Real change happens when awareness turns into advocacy. Awareness helps people...
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