Orthopedic Care in Spina Bifida
Orthopedic Care in Spina Bifida — Supporting Mobility and Independence Many people with Spina Bifida experience orthopedic and musculoskeletal conditions...
Read MoreSBANYS Featured on WNYT News Channel 13
The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.
The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.
From Awareness to Action: Turing Your Voice into Legislative Change
This session focuses on turning awareness into practical advocacy. Featuring Julia Duff, Executive Director of the Spina Bifida Association of New York State, and Cliff Perez, it includes guidance on staying informed, building connections, and developing structured efforts that can lead to legislative progress.
Blogs
Chiari Type II in Spina Bifida
Chiari Type II in Spina Bifida — Early Detection Matters Chiari Type II Malformation occurs in many people with Myelomeningocele...
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Recognizing Tethered Cord in Spina Bifida
Recognizing Tethered Cord in Children and Adults with Spina Bifida Spinal cord tethering happens when the spinal cord becomes stuck...
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Spina Bifida Affecting Motor Skills
Spina Bifida can impact motor skills in different ways. Gross motor skills—like walking, climbing stairs, or transferring—may be more noticeably...
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Snow Removal
Snow-covered sidewalks, ramps, and parking lots aren’t just inconvenient — they’re barriers. Winter shouldn’t stop accessibility. For wheelchair users and...
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Stress and Executive Function
Stress does more than affect mood — it can directly impact executive function skills such as planning, organization, attention, and...
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Transitioning to Adult Care
Transitioning to Adult Care Starts Early! Moving from pediatric to adult medical care can feel overwhelming — but it doesn’t...
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Advocating for Better Chronic Pain Care
Living with chronic pain can be challenging, but you deserve care that listens and responds. If pain lasts for weeks...
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National Pharmacists Day
Living with Spina Bifida often means managing multiple medications. National Pharmacists Day is a reminder of how important it is...
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Hospital Accessibility
Accessibility in hospitals isn’t optional—it’s your right. When visiting, speak up and ask for: Accessible spaces for mobility devices Equipment...
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