Share Your Story

Sharing Real Stories to Inspire Change and Drive Support for the Spina Bifida Community.

1) Tell us about a time you overcame a challenge related to Spina Bifida. 2) What are some misconceptions people have about living with Spina Bifida? 3) What achievements are you most proud of — big or small? 4) How has your condition shaped the person you are today? 5) What kind of support or accessibility change would make the biggest difference in your life? 6) What are three positive attributes to describe yourself?
1) What does a day in your life as a parent/caregiver of a child with Spina Bifida look like? 2) How has access to medical care, therapy, or mobility aids impacted your child’s life? 3) What has your child taught you through their journey with spina bifida? 4) Talk about the financial, emotional, or physical tolls that aren’t often visible to others. How could support make a difference? 5) Dispel common myths or misunderstandings. Speak from experience to help others understand Spina Bifida and its impact.
1) What advancements in care have made a difference in the lives of those with Spina Bifida? 2) As a professional, what do you wish the public understood better? Correct common misconceptions or share a powerful truth. 3) Explain why supporting families beyond the clinic matters—why donations, community programs, and long-term care funding are essential. 4) Without breaching confidentiality, tell a story about a family whose courage or love left a lasting impression on you.
1) What inspired you to donate to this cause? Was it a personal connection, a story, or a moment that moved you? 2) Share what you didn’t understand about spina bifida before you got involved—and how your perspective has changed. 3) Talk about an experience where you saw the spina bifida community come together—at an event, fundraiser, or online—and why that sense of unity matters.
No Choosen File
(Max 2 MB)