Protecting the Rights of People with Disabilities
The Spina Bifida Association of New York State (SBANYS) believes that every person with a disability deserves the opportunity to...
Read MoreSBANYS Featured on WNYT News Channel 13
The Spina Bifida Association of New York State was featured on WNYT News Channel 13 in early February, highlighting ongoing advocacy efforts to improve the lives of individuals impacted by Spina Bifida.
The feature followed a press conference at the New York State Capitol in Albany, where SBANYS leaders called on lawmakers to include $250,000 in the state budget to expand programs and services for the Spina Bifida community. During the interview, Executive Director Julia Duff and Board Member Joe Slaninka discussed the organization’s mission and the impact of this proposed funding on families across New York State.
From Awareness to Action: Turing Your Voice into Legislative Change
This session focuses on turning awareness into practical advocacy. Featuring Julia Duff, Executive Director of the Spina Bifida Association of New York State, and Cliff Perez, it includes guidance on staying informed, building connections, and developing structured efforts that can lead to legislative progress.
Blogs
Navigating Mobility: Choosing Accessible Vehicle Options for Spina Bifida
Choosing the right accessible vehicle makes a huge difference for individuals and families living with SpinaBifida. As children grow, their...
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Voices of the Spina Bifida Community: Ny’Ashia’s Story
For Ny’Ashia, the Walk-N-Roll is a place to meet new families, reconnect with others, and spend time with people who...
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Understanding Stress and Family Life with Spina Bifida
Why do some parents of children with Spina Bifida experience higher stress? The Spina Bifida Association's Family Functioning Guideline notes...
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Connecting Families with Spina Bifida to Support from the Start
Support for parents begins early. The Spina Bifida Association's Family Functioning Guideline emphasizes the importance of providing families with support,...
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Supporting Parents Through the Spina Bifida Journey
Families affected by Spina Bifida often demonstrate remarkable resilience. At the same time, supporting parental wellbeing is an important part...
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Supporting Growth and Independence for People with Spina Bifida
Growing up with Spina Bifida means reaching many milestones along the way. The Spina Bifida Association's Family Functioning Guideline encourages...
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Aging with Spina Bifida: What Older Adults Should Know
For older adults living with Spina Bifida, aging can bring changes in health, mobility, strength, and everyday routines. Some areas...
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Voices of the Spina Bifida Community: Josh’s Story
Disability Pride Month is a time to celebrate disabled leaders breaking barriers in every space. Today, we are proud to...
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When You Can’t Feel the Warning Signs
For people with Spina Bifida, some areas of skin may be insensate, meaning they do not feel pain, heat, or...
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