After a Spina Bifida Diagnosis

A Spina Bifida diagnosis can feel overwhelming, but it is not the end of the story.

Suddenly, there is so much to learn. Medical terms. Testing. Treatment options. Important decisions that often must be made quickly. Diagnoses commonly happen during pregnancy through routine screenings or ultrasounds. From there, parents are encouraged to meet with Spina Bifida specialists to better understand their baby’s care options.

Every person with Spina Bifida is different, and outcomes vary widely. Advances in medicine have greatly improved health, life expectancy, and quality of life. Many individuals with Spina Bifida grow up to pursue education, careers, relationships, and independence.

This is often where mothers become medical advocates. Out of necessity, they step into this role.

The Spina Bifida Association’s New and Expectant Parents Guide helps families understand diagnosis, treatment options, and what life with Spina Bifida can look like, with honesty, clarity, and hope.

Learn more: https://www.spinabifidaassociation.org/blog/a-guide-to-spina-bifida-for-expectant-and-new-parents/